History

Terry Higgins as a schoolboy, and Terry in navy uniform (credit - Rupert Whitaker)

The story of HIV in the UK and Europe is rooted in Wales.

Our namesake, Terry Higgins, was born on 10 June 1945 in Priory Mount Hospital, Pembrokeshire.

He lived with his mother in Haverfordwest and attended the local all-boys grammar school.

He eventually left Wales, having served in the Navy, to live in London. He was the first named person to die of an AIDS-related illness.

It was Terry’s friend Martyn Butler who, alongside Terry’s then-partner, Rupert Whitaker, and other friends, founded our organisation to help those affected by the HIV epidemic.

Born in Newport, Martyn raised the first funding for Terrence Higgins Trust and gave his home phone number to be our first helpline. 

He spoke time and again in the press about the loss of Terry in November 1982 and the difficult subject of HIV.